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Thursday, June 11, 2015
Adotpion
I wasn't sure how to title this post. The following post are about our adoption (4th time) of Addie. A beautiful 2 (just turned 3) year old. We knew she has special needs. She was listed a special focus child because she had more then one special need. She has repaired CHD, cleft lip repaired , cleft pallet needs to be and seizure activity. Ive tried to post about how difficult it can be when you travel half way around the world and are given a very sick child. That once you get home you find our her needs are sooooooo much more then you imagined. How the whole family is affected and struggle with little sleep, hospital stays, and no normalcy. How your heart brakes for this tiny little girl who you just want to make better. How scary it all was in China and how some families might have walked away.
"Regular Days"
So today is one week out of the hospital. We give Addie meds 3 times a day. It will be back down to two after her current antibiotic is done. She will be on a low dose of antibiotic until we figure out the throwing up but that is only once a day and mixed with her other meds. We got the call yesterday that they can put in her ear tubes tomorrow. The thing that is going to suck is they scheduled her for 1 pm so no food after 5:30 am. Now we usually wouldn't have take that time but we are still trying to figure out why she is screams like she is in pain at all hours of the day and night for no reason. And she doesn't respond to sounds so they will test her hearing while she is sedated. They will also run a test to make sure her urine isn't spilling into her kidneys and blood work for genetics. All while sedated for 5th time (I think) since we've had her. So no regular days for us yet.
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